I'm a single mum of three boys, youngest being 3 & 1/2mths, i have an 8 & 1/2 yr old who has ADHD and I have a 6 & 1/2 year old who has charge syndrome. The problem i have is with my 6 & 1/2yr old as his urine has a very strong smell. He uses the toilet most days while attending school. However, when he gets home he forgets to go toilet even when I've taken him, 5 mins later he will have wet pants. I've been told he can not sense when he needs to go but can sense when he needs to goes number twos. Is this a common thing in children that have special needs? He like wearing pull ups and sometimes when we go out, he argues with me about putting a pull up on. I'm constantly doing washing and sometimes find it hard to get the smell out of his clothes. Do you have any ideas please.?
it is very common for children with special needs to take longer to attain bladder control, with many parents sighting toileting issues as one of the most challenging issues. Children with Charge syndrome experience an overall delay in physical development and are much slower to reach motor milestones than other children; they are also more likely to experience kidney or urinary tract abnormalities, making it more difficult for them to gain control of their bladders. Ideally you should speak with your paediatrician about how best to support your son during this time. I would recommend that you continue using absorbent pants both during the day and at night until he achieves bladder control, especially if he is willing to wear them – this will reduce the stress associated with wet clothes as well as the constant smell of urine. I would also recommend that you contact the Continence Foundation of Australia (1800 33 00 66) who may be able to direct you toward funding bodies that can help with the associated costs.
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